• About
    • About Lorna
    • Work with Lorna
    • Media
  • Projects
    • Scars Project
    • Skin Deep - Breast Cancer Warriors
    • Silent Screams - Domestic Violence
    • Freckle Project
    • Love is Love
    • A few of my favourite things
    • Through hers, through theirs
    • State of Mind - Raising Awareness for Mental Illness
  • State of Mind Exhibit
  • Stories
Lorna Dancey, Photographer, Writer, Storyteller
  • About
    • About Lorna
    • Work with Lorna
    • Media
  • Projects
    • Scars Project
    • Skin Deep - Breast Cancer Warriors
    • Silent Screams - Domestic Violence
    • Freckle Project
    • Love is Love
    • A few of my favourite things
    • Through hers, through theirs
    • State of Mind - Raising Awareness for Mental Illness
  • State of Mind Exhibit
  • Stories

State of Mind - Two miracles

They see the beauty of the world in a way that is unique to only them.   They enjoy the simple pleasures offered in life that you and I usually take for granted.  They like to laugh and be silly and run around in the playground.  They will stop and smell a pretty flower and pause to listen to the secrets’ the wind carries. They love animals, art, music and photography and they know they are not like any other boys their age.

To their mom, they are two miracles that have been fighting for a life free from judgement and heartache. To the outsider, they are seen as adults and people don’t understand why they laugh and play like children, but it’s because they are.

They are 22-year-old twins who, regardless of their age, will always live their lives of an 11-year old. They were born with Fragile X syndrome.  This is a genetic disability that not only turns on the Autism gene but also affects both boys mentally, behaviourally and physically.   

People stare at them, point, laugh and ask what is wrong with them.  They have been called retarded more times then they can count.  They have been picked on, beat up and threatened all because they are misunderstood to the world that doesn’t take the time to get to know them. 

They have overcome so much adversity, pain, health problems, mental health issues, loneliness, and fear. They know they have limitations and will never drive a car, maintain a long-term relationship that will lead to marriage and a family.  They know they are different and it hurts them terribly because all they want is to be just like you and me...

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tags: Fragile X syndrome, Twins, bullied, Miracles, simple pleasures, loneliness, Whats your story, Be kind to each other, Yeg, Scars Project, Real issues, Real people, Real stories
categories: Lorna Dancey Photography
Saturday 01.27.18
Posted by Lorna Dancey
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